Pierre Robin Network Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. http://www.pierrerobin.org
Chase's Story Personal account of one child's experience of this condition. Includes photographs. http://www.pierrerobin.com
NORD - Pierre Robin Syndrome Sample report, plus links to organisations. [Fee required for full report] http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
