Erythromelalgia (EM) 
Email group to discuss treatments and the affects of the condition.
http://groups.yahoo.com/group/EMThe Erythromelalgia Association 
A non-profit organization dedicated to research and education regarding this painful disorder. Offers details about the disorder, the organization, FAQs and membership information.
http://www.erythromelalgia.org/
NORD: Erythromelalgia 
Sample report, plus links to organisations. [Fee required for full report.]
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Erythromelalgia