National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
http://www.urmc.rochester.edu/nihregistry/

MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
http://www.mdarideforlife.org/

Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
http://www.livingfortoday.org

Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
http://www.see-search.com/musculardystrophycampaign.htm

Duchenne/Becker Muscular Dystrophy
Includes key facts and animated slide shows of causes, diagnosis and treatment.
http://www.ygyh.org/dmd/

FSH-MD Support Group
Provides support for those with Facio Scapulo Humeral and their carers.
http://www.fsh-group.org/index2.html

DMD Pioneers
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
http://www.dmdpioneers.org/

DMD Information
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
http://www.angelfire.com/band/teja/index_dmd.html

NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/disorders/md/md.htm

General Practice Notebook - Duchenne muscular dystrophy
Clinically-oriented information.
http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035

Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy
Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.
http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf

A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp

Muscular Dystrophy
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
http://www.musculardystrophy.gr/