NINDS: Syringomyelia 
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/syringomyelia/syringomyelia.htmAmerican Syringomyelia Alliance Project Inc
Aims to improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders.
http://www.asap.org/
Ghetto River Nymph
Online weblog from sufferer of syringomyelia. Includes links to related organizations
http://rivernymph.blogspot.com
