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 Directory: Top: Health: Conditions and Diseases: Neurological Disorders: Congenital Anomalies: Anencephaly (12)
 Related Categories
Health: Mental Health: Grief, Loss and Bereavement: Support Groups
Health: Reproductive Health: Pregnancy and Birth: Complications
Society: Death: In Memoriam: Infants: Neural Cord Defects
Society: Issues: Health: Transplantation
 Related Web Pages
Anencephaly Support Foundation
Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
http://www.asfhelp.com/

Anencephaly Awareness
Information including possible causes and future prevention. Also a personal story.
http://www.angelfire.com/mb/jessicasjourney/info.html

Anencephaly - Jessicas Journey
A parent's personal experience, relating her daughter's story.
http://www.geocities.com/hotsprings/spa/4346/

Anencephaly Net
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
http://www.anencephaly.net/

Anencephaly Information
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
http://www.anencephalie-info.org/

Moral Principles Concerning Infants with Anencephaly
Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
http://www.ewtn.com/library/PROLIFE/bcdanen1.htm

Carrying to Term Pages
Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
http://www.geocities.com/tabris02/index.html

Mourning Mommies
Online support group for women who have lost babies to anencephaly.
http://www.geocities.com/mourningmommies/

Yahoo! Groups: Anencephaly Blessings from Above
A Christian pro-life support group for parents those carrying to term.
http://groups.yahoo.com/clubs/anencephalyblessingsfromabove

Yahoo! Groups: Anencephaly
Global Health Network support group open to anyone affected by anencephaly.
http://groups.yahoo.com/group/anencephaly/

Faith Aminah Shabazz
Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
http://faithaminah.tripod.com/

NINDS: Anencephaly
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm

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