Intracranial Hypertension Research Foundation
Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research news, and links to related sites.
http://www.ihrfoundation.org

BIH
This site provides a listing of symptoms associated with Benign Intracranial Hypertension. View the steps to diagnosis, and visit the definitions page for explanations to the most common terms associated with BIH. A message board is provided to connect with others.
http://www.angelfire.com/hi5/bihuk/

Yahoo! Groups : PTC
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate.
http://groups.yahoo.com/group/ptc/

Pseudotumor Cerebri Community
Provides support for patients, friends and families. Includes information on symptoms, diagnosis, and treatment, as well as message boards and an open chat room.
http://groups.msn.com/pseudotumorcerebri

Yahoo! Groups: PTC-Support-Group
This is an email support group for people who have Pseudotumor Cerebri. A chat room is also provided for additional support.
http://groups.yahoo.com/group/ptc-support-group/?yguid=88510150

Pseudotumor Cerebri Informational Homepage
The Pseudotumor Cerebri Informational Homepage offers an explanation of Pseudotumor Cerebri with suggestions on improving headache pain, along with possible diet modifications. Links for PTC support are also included.
http://www.geocities.com/Wellesley/Garden/1297/pseudotumorcerebri.index.html

Team IIH
Information on Idiopathic Intracranial Hypertension (IIH, also known as Pseudotumor Cerebri), that includes pages written in Swedish, English, Italian, and German.
http://groups.msn.com/teamIIHplus

Living with Pseudotumor Cerebri
Includes an online book called "The PTC Primer," an explanation of pseudotumor cerebri, newsletters, sign-up for a patient database, and links to related sites and support groups.
http://www.findmemyhouse.com/ptc/index.htm

care2 BIH group
A support and educational group for those diagnosed with B.I.H, their families and friends; also for compassionate souls who wish to learn more and help others.
http://www.care2.com/c2c/group/BIH

Dutch PTC Support Group
Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey results.
http://www.pseudotumorcerebri.nl/

IIH UK
Organization aims to campaign for research and to promote education about idiopathic intracranial hypertensio. Includes a number of information leaflets about IIH, its symptoms, and related subjects.
http://www.iih.org.uk/

IIH Support
A forum offering support, advice and help for people with idiopathic intracranial hypertension, also known as BIH (Benign Intracranial Hypertension), and PTC (pseudotumor cerebri).
http://www.iihsupport.org/