IFOPA - International Fibrodysplasia Ossificans Progressiva Association 
Support group for families. Information about the condition, treatment, and research efforts.
http://www.ifopa.org/SFGate
San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.
http://sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/05/31/BONES.TMP
McKay Orthopaedic Research Laboratory
Summaries of current research projects at the University of Pennsylvania.
http://www.uphs.upenn.edu/orl/research/fop/
