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 Directory: Top: Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Marfan Syndrome (25)
 Related Categories
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome
 Related Web Pages
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
http://www.marfan.org.uk

National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/

Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/

Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/

American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presenter.jhtml?identifier=4672

International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/

Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arthritis/types/marfan/01

Marfan Syndrome
A Question-Answer format page of information.
http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411

Polish Marfan Association
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
http://www.marfan.sprint.pl/

Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/

Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
http://hometown.aol.com/bjthaler6/myhomepage/

The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html

A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html

Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com

Marfan Syndrome
A guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm

Marfan Support and Information
Support group in New South Wales, Australia.
http://www.marfan.net.au

South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za

Marfan Syndrome
Article from eMedicine.
http://www.emedicine.com/PED/topic1372.htm

Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie

Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp

MFS Type 1 Fibrillin Gene
Major resources listed as well as genetic information.
http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
http://marfanlife.net/lists/

Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://marfan.szm.sk

Marfan Syndrome
Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mmhe/sec23/ch279/ch279c.html

 Related Newsgroup(s)
Usenet alt.support.marfan - news: - Google Groups

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