Robinow Syndrome Foundation 
Details about the organization as well as the disease. Includes general information, a survey, newsletter and photos.
http://www.robinow.org/National Library of Medicine
The synonyms of Robinow syndrome, a summary and a list of major features.
http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome562.html
Yahoo! Groups
A new email group for sharing and learning about Robinow syndrome. Join, post and read from this site.
http://groups.yahoo.com/group/robinow_syndrome/
NORD: Robinow Syndrome
Offers a general discussion, the synonyms and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Robinow%20Syndrome
