Parental Advise on Coping with Chronic Illness of your Child 
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htmTeenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers.
http://www.irishhealth.com/?level=4&id=455#top
Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
http://www.allaboutkids.umn.edu/kdwbvfc/FamilyMonograph.PDF
What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves.
http://endoflifecare.tripod.com/kidsyoungadults/id23.html
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
http://www.aacap.org/publications/factsfam/grief.htm
Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning.
http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277
Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html
The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
http://www.aacap.org/publications/factsfam/illness.htm
Bandaides and Blackboards
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Youth in Transition
Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
http://www3.bc.sympatico.ca/steeksma/Medical/transition.htm
Pain and Chronic Illness in Children
Short paper on the importance of pain management.
http://www.touchbriefings.com/pdf/14/lth031_r_cowley.PDF
Starbright Foundation
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm
