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 Directory: Top: Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Congenital (50)
Cardiothoracic Surgery (117)
Personal Pages (9)
Support Groups (12)
 Related Categories
Health: Conditions and Diseases: Cardiovascular Disorders: Congenital Anomalies
Health: Conditions and Diseases: Chronic Illness
 Related Web Pages
Hearts Of Hope
Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
http://www.heartsofhope.iinet.net.au/

Congenital Heart Disease Information and Resources
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
http://www.tchin.org

Congenital Heart Diseases Their Study and Treatment
A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)
http://www.redtail.net/owc

About.com
Information about congenital heart defects, and February 14th being recognized as a day for hearts.
http://heartdisease.about.com/blchd.htm

Minimal Invasive Congenital Heart Surgery
An article about treating birth defects of the heart using this techniques.
http://heartdisease.about.com/library/weekly/aa011198.htm

CHD Support Graphics
A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.
http://heartdisease.about.com/chdgraphics.htm

Resources from California State University
Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
http://www.csun.edu/~hcmth011/heart/

HLHS Information
Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
http://hlhsinfo.homestead.com/

Palliative Operations
The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
http://heartdisease.about.com/library/weekly/aa112397.htm

Ventricular Septal Defect
VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.
http://heartdisease.about.com/library/weekly/aa020898.htm

Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
http://www.pediatricheartsurgery.com

CHD Awareness Day
The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
http://www.tchin.org/aware.htm

Persistent Pulmonary Hypertension of the Newborn
A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.
http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm

Coping with Congenital Heart Disease in Your Baby
Article with some useful information, published by The American Academy of Family Physicians.
http://www.aafp.org/afp/990401ap/990401d.html

Adult Congenital Heart Association
Information, resources and support for adults with congenital heart disease.
http://www.achaheart.org/

AMA: Statement for Health Care Professionals
Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young.
http://www.americanheart.org/presenter.jhtml?identifier=1210

Feeding Your Infant With Congenital Heart Disease
American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead.
http://www.americanheart.org/presenter.jhtml?identifier=4885

Congenital Heart Disease Treatments
Short and simple explanations of the different procedures used in treating heart birth defects.
http://www.americanheart.org/presenter.jhtml?identifier=4580

American Heart Association
The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.
http://www.americanheart.org/presenter.jhtml?identifier=1477

CongenitalHeartDefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.
http://www.congenitalheartdefects.com

International Society for Adult Congenital Cardiac Disease
The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
http://www.isaccd.org/

Fontan Operation
Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
http://www.fontanoperation.com/fontan.htm

Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
http://www.heartdiseaseonline.com

Grown Up Congenital Heart Patients Association (GUCH)
Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
http://www.guch.org.uk

Our Little Braveheart
Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
http://members.tripod.com/stephandjake-ivil/braveheart/

Heart Defects: Truncus Arteriosus Type 1
Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
http://www.childrenheartinstitute.org/educate/defects/truncus1.htm

Prenatal Diagnosis of Heart Problems
UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.
http://www.fetalcardiology.co.uk

MedicineNet: Congenital Heart Disease
Detailed look at the causes, symptoms, types, and treatments.
http://www.medicinenet.com/congenital_heart_disease/article.htm

The Charlie Ramsey Research Fund
Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.
http://crrf.org.uk

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